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Analytic Codebook for Concurrent Care

The “Effectiveness of concurrent care to improve pediatric and family outcomes at the end of life: An analytic codebook” is now available:

Purpose of the codebook
The codebook includes documentation for the research project Effectiveness of Concurrent Care to Improve Pediatric and Family Outcomes. This research project was sponsored by the National Institute of Nursing Research and Office of the Director, Grant Number R01NR017848 (PI: Lindley). Additional information about the project can be found online at

This codebook was designed for researchers and analysts interested in using Medicaid data to investigate the utilization of hospice services by pediatric patients. Publications prepared using these variables are available free of charge at PubMed.

Data overview
Medicaid is an entitlement program that provides health care coverage to low-income families and is the most extensive health insurance program for children younger than 21. All information about Medicaid enrollees and health services covered by the program are managed by the Medicaid Statistical Information System (MSIS).1 It includes data on enrollees from all 50 states and the District of Columbia but excludes those residing in Puerto Rico or other U.S. territories. Since MSIS was designed for administrative purposes and not research, the Medicaid Analytic Extract (MAX) data system was created as a research tool to provide information on Medicaid enrollment, service utilization, and expenditure at the enrollee level