Taking to Policymakers
Need state specific resources when discussing policy for children? Our customized infographics are tailored to the states and designed to assist you in having a conversation with your policymakers. These are available for download.
State Medicaid Contacts
Listing of state Medicaid Directors
2024 State Pediatric Legislation Under Consideration
Perinatal Hospice / Perinatal Palliative Care
Pediatric Hospice / Pediatric Palliative Care
General Hospice
Elimination of Hospice or Related Certificate of Needs (impacts rural kids)
Miscellaneous Hospice and Palliative care (impacts kids)
Caregiver compensation
**Paid Family and Medical Leave** – several bills have been introduced this legislative session and carried over from last session. Please click here for a full list.
Hospice, Palliative Care and Related Eligibility
Hospice, Palliative Care and Related Establishment / Capacity Management
Hospice, Palliative Care and Related Exemptions or Exceptions
Hospice, Palliative Care and Related Financials
Hospice, Palliative Care and Related Prescribing / Dispensing / Administering Medication(s)
Hospice, Palliative Care and Related Staffing
Hospice, Palliative Care and Related – Other
Make-a-Plan Campaign
The 2020 make-a-plan campaign was designed to prepare if Concurrent Care for Children was struck down by the US Supreme Court. ACA, Section 2302 in a short but defining provision within the ACA that has dramatically altered continued access to critical medical services for children in hospice. This was a coordinated response among clinicians, policymakers, and researchers to generate solidarity in messaging that underscored the impact of Concurrent Care for Children.