Taking to Policymakers

Need state specific resources when discussing policy for children? Our customized infographics are tailored to the states and designed to assist you in having a conversation with your policymakers. These are available for download.

State Medicaid Contacts

Listing of state Medicaid Directors

2024 State Pediatric Legislation Under Consideration

Perinatal Hospice / Perinatal Palliative Care

Pediatric Hospice / Pediatric Palliative Care

General Hospice

Bereavement

• CA AB2011 – Unlawful employment practices: small employer family leave mediation program: reproductive loss leave (amending)
• CA AB2581 – Healing arts: continuing education: maternal mental health.
• CA AB2624 – An act to add Section 2710 to the Penal Code, relating to prisoners. Bereavement leave. (amending)
• CA AB2270 – Healing arts: continuing education: menopausal mental or physical health. (amending)
• CA AB2499 – Unlawful employment practices: discrimination for time off or status as a victim of violence. (amending)
• CA SB1318 – Pupil health: suicide prevention policies: pupil suicide crisis.
• MA S2562 – Relative to bereavement leave. Under the Family and Medical Leave Act.
• MA S105 – Relative to supporting families dealing with sudden unexplained death in pediatrics.
• MA S782 / MA H1240 – Relative to Medicaid coverage for doula services. Health Care Financing.
• MA H1139 – Relative to insurance coverage for doula services.
• MA S2734 – Relative to birthing justice in the Commonwealth.
• NC H996 / NC S841– State Employees/Give 3-Days Bereavement Leave.
• NC H961 / NC H107– Study State Employee Bereavement Leave/Funds.
• NJ A3505 / NJ S2978 – Concerns bereavement leave for death of child, miscarriage, stillbirth, and certain other circumstances.
• NJ S1782 / NJ A2774– Requires certain hospitals to establish bereavement areas.
• NJ A3816 / NJ S621– Concerns bereavement leave for miscarriage and stillbirth.
• NJ A2009 – Concerns worker leave and bereavement.
• NJ AJR93 – Designates May 6 of each year as “Visiting Nurse Association Day.”
• NJ A03737 / NJ S04259– Relates to paid family leave and bereavement for fetal death, still birth, and an infant being medically not viable to survive.

Caregivers Compensation

• MA S2605 – Improving the Massachusetts paid family medical leave law
• NC SB815 – NC Paid Family Insurance Act
• NC SB878 – Working Family Act
• NJ A3451 – Revises law concerning family leave to extend protection by reducing, over time, employee threshold from 30 employees to five employees in definition of employer
• NJ A623 / NJ S1070 – Concerns temporary disability insurance and family leave insurance benefits
• NJ A3505 / NJ SB2978 – Concerns bereavement leave for death of child, miscarriage, stillbirth, and certain other circumstances
• NJ SB1661 / NJ A945 – Prohibits payment to public employees at retirement for certain unused sick leave, provides for forfeiture of payment for unused sick leave for certain criminal convictions, and requires documentation for use of sick leave
• PA HB2000 – In tax credit and tax benefit administration, further providing for definitions; providing for paid family and medical leave tax credit; and establishing the Family and Medical Leave Tax Credit Program
• PA SB580 – Establishing the Pennsylvania Family and Medical Leave Program and the Family and Medical Leave Fund; conferring powers and imposing duties on the Department of Labor and Industry; creating a right of action; and imposing penalties
• PA HB2000 In tax credit and tax benefit administration, further providing for definitions; providing for paid family and medical leave tax credit; and establishing the Family and Medical Leave Tax Credit Program
• US SB3680 – Paid Family and Medical Leave Tax Credit Extension and Enhancement Act

Elimination of Hospice or Related Certificate of Needs (impacts rural kids)

Eligibility – Hospice, Palliative Care, and Related

Establishment / Capacity Management – Hospice, Palliative Care, and Related

Exemptions or Exceptions – Hospice, Palliative Care, and Related

• No current legislation outstanding at this time

Financials – Hospice, Palliative Care, and Related

Miscellaneous – Hospice, Palliative Care, and Related

• NJ AJR27 – Designates November each year as “Hospice and Palliative Care Awareness Month”

Prescribing / Dispensing / Administering Medication(s) – Hospice, Palliative Care, and Related

Staffing – Hospice, Palliative Care and Related

Other – Hospice, Palliative Care and Related

• PA HB1825 – Further providing for title, for definitions, for State Board of Nursing, for dietitian-nutritionist license required, for unauthorized practices and acts not prohibited, for temporary practice permit, for graduates of schools of other states, territories or Dominion of Canada, for persons entitled to practice, for certified registered nurse practitioners and qualifications, for scope of practice for certified registered nurse practitioners, for prescriptive authority for certified registered nurse practitioners, for Drug Review Committee, for professional liability, for reporting of multiple licensure, for continuing nursing education, for punishment for violations, for refusal, suspension or revocation of licenses, for reinstatement of license and for injunction or other process; and providing for the expiration of the State Board of Nursing’s power to license certified registered nurse practitioners.

Make-a-Plan Campaign

The 2020 make-a-plan campaign was designed to prepare if Concurrent Care for Children was struck down by the US Supreme Court. ACA, Section 2302 in a short but defining provision within the ACA that has dramatically altered continued access to critical medical services for children in hospice. This was a coordinated response among clinicians, policymakers, and researchers to generate solidarity in messaging that underscored the impact of Concurrent Care for Children.