A study by UT’s College of Nursing will seek to understand if a new approach to end-of-life care can improve the quality of life of children with terminal diseases.
Our project will provide the much needed higher level evidence by conducting a sophisticated and methodologically rigorous analysis of administrative data.
Associate Professor Lisa C. Lindley has received a four-year award of $1.5 million from the National Institutes of Health National Institute of Nursing Research for her project “Effectiveness of Concurrent Care to Improve Pediatric and Family Outcomes at End of Life.” The study will investigate the impact of concurrent hospice care compared to standard hospice care in improving continuity and quality of pediatric end of life. Our project will provide the much needed higher level evidence by conducting a sophisticated and methodologically rigorous analysis of administrative data (e.g., Medicaid data) to create a unique nationally-represented data set stemming from the first ever longitudinal investigation comparing the effectiveness of pediatric concurrent care versus standard pediatric hospice care to improve pediatric and family outcomes.
Award of $1.5 million from the NIH National Institute of Nursing Research
Associate Professor Lisa C. Lindley, PhD, RN, FPCN, has received a four-year award of $1.5 million from the National Institutes of Health National Institute of Nursing Research for her project “Effectiveness
Special Report: Part II
Part 2 of 6 in a Special Report on Concurrent Care for Children Exploring what each state defined as, “disease-directed therapies/treatments/services,” appeared to be the most logical way of beginning
Special Report: Part I
What has happened since 2010 for Concurrent Care? It has been nearly a decade since changes in Medicaid regulations enabled families and terminally-ill children to opt for concurrent care. The
Utah Policy Brief: Innovation in Implementation
Our research team conducted an extensive review of publicly available, state-level Medicaid documents including manuals, state plan amendments, and letters. We found that between 2010 and 2017 states had taken
Lindley inducted to Academy Fellows class of 2019
The American Academy of Nursing recently inducted the 2019 class of Academy fellows in a ceremony in Washington, D.C. The inductees included Lisa C. Lindley, PhD, RN, FPCN, FAAN, among
Pediatric concurrent hospice care: How did states implement?
Since 2010 "Concurrent Care for Children" has been in place mandating coverage of concurrent care for terminally-ill children receiving Medicaid/CHIP benefits. How have States done in implementation? A recent Policy
Nightingale Endowed Faculty Fellowship Award
The first-ever Nightingale Endowed Faculty Fellowship has been awarded to Lisa C. Lindley, PhD, RN, FPCN, an Associate Professor in the College of Nursing at the University of Tennessee, Knoxville.
2019 CAPC National Seminar
The abstract submission, Creating a financing analysis model for pediatric concurrent care: A pilot study, was accepted to the CAPC - Center to Advance Palliative Care - National Seminar 2019.
Welcome to the Team
Dr. Svynarenko joined the Pediatric Concurrent Care Research team as a Postdoctoral Fellow in August 2019. Dr. Svynarenko has a Ph.D. in Family Sciences, University of Kentucky, and a Ph.D.
Western Journal of Nursing Research Article accepted
Our #R01 article testing the validity of the pediatric complex chronic conditions (CCC) systems was accepted for publication. #Pediatric CCC is an important measure in our R01 model, and we were able to test
Clinical Toolkits Made Easy: NHPCO’s Standards of Practice for Pediatric Palliative Care and Hospice
At first glance, the NHPCO's 36-page toolkit may seem daunting to approach, but it is perhaps one of the most detail-oriented and comprehensive toolkit we have come across. Ultimately, this
State Resources
The Concurrent Care for Children Requirement (CCCR) passed on a federal level March 23, 2010. However, for this requirement to be practically carried out in each state it was essential
New Podcast: Medicaid Claims Data
Listen to a podcast of the latest audio recording from the Concurrent Care for Children R01 research study exploring Medicaid claims data for children with terminal or life threatening illnesses.
Research reported in this publication was supported by the National Institute Of Nursing Research of the National Institutes of Health under Award Number R01NR017848. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.