Most Recent Findings
- Steinhorn, D., Kuchar, A., & Lindley, L.C. (2023). The curious conundrum of concurrent care. Journal of Pain and Symptom Management. Epub.
- Lindley, L.C., & Hawley, B. (2023). Three steps to counter policy misinformation in pediatric hospice and palliative care. NHPCO Pediatric e-Journal, 71, 22-23.
Outcomes
Stone Sharp, W., Svynarenko, R., Clarke Fornehed, M.L., Cozad, M.J., Keim-Malpass, J., Mack, J.W., Hinds, P.S., Mooney-Doyle, K., Mendola, A., & Lindley L.C. (2023). Conceptualizing the value of pediatric concurrent hospice care. Journal of Hospice and Palliative Nursing, 25(1), 31-38.
Lindley, L.C., Cozad, M.J., Mack, J.W., Keim-Malpass, J., Svynarenko, R., & Hinds, P.S. (2022). Effectiveness of pediatric concurrent hospice care to improve continuity of care. American Journal of Hospice and Palliative Medicine. 39(10), 1129-1136.
Lindley, L.C., Keim-Malpass, J , Cozad, M.J., Mack, J.W., Svynarenko, R., Fornehed, M.L., Stone, W., Qualls, K., & Hinds, P.S (2022). A national study to compare effective management of constipation in children receiving concurrent hospice versus standard hospice care. Journal of Hospice and Palliative Nursing. 24(1), 70-77.
Lindley, L.C., Cozad, M.J., Svynarenko, R., Keim-Malpass, J., & Mack, J.W. (2021). A national profile of children receiving pediatric concurrent hospice care, 2011 to 2013. Journal of Hospice and Palliative Nursing. 23(3). 214-220.
Lindley, L.C., Svynarenko, R., & Beebe, L. (2021). Mental health and developmental disabilities in US children admitted to hospice care: A comparison of age groups. International Journal of Palliative Nursing. 27(3), 124-130.
Mooney-Doyle, K., Keim-Malpass, J., Svynarenko, R., & Lindley, L.C. (2022). A comparison of young adults with and without cancer in concurrent hospice care: Implications for transitioning to adult health care. Journal of Adolescent and Young Adult Oncology. 11(1), 35-40.
Svynarenko, R., Mack, J,W., & Lindley, L.C. (2021). Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatric Blood & Cancer. 68(9), epub.
Keim-Malpass, J., Cozad, M.J., Svynarenko, R., Mack, J.W., & Lindley, L.C. (2021). The medical complexity of children receiving pediatric concurrent hospice care. Journal for Specialists in Pediatric Nursing. 26(4), Epub.
Laird, J.M., Keim-Malpass, J., Mack, J.W., Cozad, M.J. & Lindley, L.C. (2020). Examining variation in state Medicaid implementation of ACA: The case of Concurrent Care for Children. Health Affairs, 39(10), 1770-1775.
Lindley, L. C., Keim-Malpass, J., Svynarenko, R., Cozad, M. J., Mack, J.W., & Hinds, P .S. (2020). Pediatric concurrent hospice care: A scoping review and directions for future research. Journal of Hospice & Palliative Nursing, 22(3), 238-245.
Patterns of Care
Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Newmann, W., & Keim-Malpass, J. (2021). Patterns of health care services during pediatric concurrent hospice care: A national study. American Journal of Hospice & Palliative Medicine, 39(3), 282-288.
Svynarenko, R., Beebe, L., & Lindley, L.C. (2021). Identifying patterns of pediatric mental and behavioral health at end of life: A national study. Journal of Hospice and Palliative Nursing, 23(6), 571-578.
Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Newmann, W.C., & Harris, R. (2023). A national study of health care service patterns at the end of life among children with cardiac disease. Journal of Cardiovascular Nursing. 38(1), 44-51.
Svynarenko, R., Lindley, L.C., Mooney-Doyle, K., Mendola, A., Naumann, W., & Mack, J.W. (2022). Patterns of health care services among children with advanced cancer in concurrent hospice care. Cancer Nursing, 45(6), e843-e848.
Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Newmann, W., & Fortney, C.A. (2021). End-of-life health care service needs among children with neurological conditions: A latent class analysis. Journal of Neuroscience Nursing. 53(6):238-243.
Costs
Lindley, L.C., Cozad, M.J., Svynarenko, R., Keim-Malpass, J., Mack, J.W., & Hinds, P.S. (2022). Evaluating the cost-effectiveness of pediatric concurrent versus standard hospice care. Nursing Economic$, 40(6), 297-304.
Cozad, M.J., Svynarenko, R., Hinds, P.S., Mack, J.W., Keim-Malpass, J, & Lindley, L.C. (2022). Pediatric concurrent hospice care: Cost implications of a hybrid payment model. American Journal of Hospice and Palliative Medicine. 39(12), 1436-1442.
- James, K., Hawley, B., McCoy, C.R., & Lindley, L.C. (2021). Challenges and opportunities of providing pediatric funeral services: A national survey of funeral professionals. American Journal of Hospice and Palliative Medicine, epub
- Lindley, L.C., Richar, C.S., Hoit, T, & Steinhorn, D.M. (2021). The cost of pediatric concurrent hospice care: An economic analysis of relevant cost components, review of the literature, and case illustration. Journal of Palliative Medicine, 24(9), 1291-1298.
- Lindley, L. C. (August, 2020). The future of concurrent pediatric palliative care. Louisiana
and Mississippi Hospice and Palliative Care Organization Newsletter. - Lindley, L.C. & Morvant, A. (August, 2020). How to hospitalize a child receiving concurrent hospice care. NHPCO Pediatric e-Journal. 60, 61-64.
- Lindley, L. C., & Carlosh, K. A. (February, 2020). Pediatric concurrent care: Building evidence, informing providers, and serving families. NHPCO Pediatric e-Journal. 58, 37-39.
- Laird, J. M., & Lindley, L. C. (November, 2019). Implementing pediatric concurrent hospice care: Best Practices – Utah. Policy Brief #19-002, University of Tennessee, Knoxville, College of Nursing.
- Laird, J. M., & Lindley, L. C. (October, 2019). Pediatric concurrent hospice care: How did states implement? Policy Brief #19-001, University of Tennessee, Knoxville, College of Nursing.
- Lindley, L.C. (October, 2022). End-of-life Strategies to Improve Pediatric Health Outcomes and Reduce Disparities in Rural Appalachia (R56NR019444). At the 2022 virtual NINR Rural Health Workshop. (Podium).
- Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Naumann, W., & Fortney, C.A. (August, 2022). A latent class analysis of end-of-life health care service needs among children with neurological conditions. At 2022 AANN-INNRS Virtual International Neuroscience Nursing Research Symposium. (Podium).
- Lindley, L.C. (October 2021). How Effective Is Pediatric Concurrent Hospice Care: Research Updates. At the 2021 Pediatric Palliative Care Webinar Series. (Keynote Speaker). https://pedeolcare.utk.edu/2021-ppc-concurrent-care-presentation-lindley_final/
- Lindley, L.C. (September, 2021). Pediatric concurrent care: A report on the evidence. At the 2021 Annual GHPCO Pediatric Forum, online. (Keynote Speaker). https://pedeolcare.utk.edu/ghf-2021-presentation_final/
- Lindley, L.C. (July, 2021). How Effective Is Pediatric Concurrent Hospice Care: Research Updates. At the 2021 Pediatric Palliative Care Webinar Series. (Keynote Speaker).
- Lindley, L.C. (March, 2021). Effectiveness of Pediatric Concurrent Versus Standard Hospice Care to Improve Continuity of Care. At the 2021 PCRC Virtual Data Blitz. (Podium).
- Lindley, L.C. (August 2020). Pediatric Concurrent Care. At the 2020 Pediatric Palliative Care Webinar Series. (Keynote Speaker). https://pedeolcare.utk.edu/ppc-2020-presentation_final/
- Lindley, L.C. (February, 2020). Benefits and Challenges of Pediatric Concurrent Care – Evidence from 10 years. At the 2020 Texas Pediatric Palliative Care Consortium Mid-Winter Conference, Fort Worth, Texas. (Keynote Speaker).
- Lindley, L.C. (November, 2019). Got PHI or PII. College of Nursing Experience with the UTK Secure Research Enclave. At the HITS monthly meeting. Knoxville, TN. (Keynote Speaker)
- Lindley, L.C. (June, 2018). 7 Things Nurse Executives Should Know About Pediatric Hospice and Palliative Care. At the 2018 Tennessee Organization of Nurse Executives – Knoxville Chapter Meeting. Knoxville, TN, (Podium).
Updated submissions of research articles, findings, and/or processes and experiences during the project period are shown here as available.