Outcomes

Steinhorn, D., Kuchar, A., & Lindley, L.C. (2023). The curious conundrum of concurrent care. Journal of Pain and Symptom Management. Epub.

Lindley, L.C., & Hawley, B. (2023). Three steps to counter policy misinformation in pediatric hospice and palliative care. NHPCO Pediatric e-Journal, 71, 22-23.

Stone Sharp, W., Svynarenko, R., Clarke Fornehed, M.L., Cozad, M.J., Keim-Malpass, J., Mack, J.W., Hinds, P.S., Mooney-Doyle, K., Mendola, A., & Lindley L.C. (2023). Conceptualizing the value of pediatric concurrent hospice care. Journal of Hospice and Palliative Nursing, 25(1), 31-38.

Lindley, L.C., Cozad, M.J., Mack, J.W., Keim-Malpass, J., Svynarenko, R., & Hinds, P.S. (2022). Effectiveness of pediatric concurrent hospice care to improve continuity of care. American Journal of Hospice and Palliative Medicine. 39(10), 1129-1136.

Lindley, L.C., Keim-Malpass, J , Cozad, M.J., Mack, J.W., Svynarenko, R., Fornehed, M.L., Stone, W., Qualls, K., & Hinds, P.S (2022). A national study to compare effective management of constipation in children receiving concurrent hospice versus standard hospice care. Journal of Hospice and Palliative Nursing. 24(1), 70-77.

Lindley, L.C., Cozad, M.J., Svynarenko, R., Keim-Malpass, J., & Mack, J.W. (2021). A national profile of children receiving pediatric concurrent hospice care, 2011 to 2013. Journal of Hospice and Palliative Nursing. 23(3). 214-220.

Lindley, L.C., Svynarenko, R., & Beebe, L. (2021). Mental health and developmental disabilities in US children admitted to hospice care: A comparison of age groups. International Journal of Palliative Nursing. 27(3), 124-130.

Mooney-Doyle, K., Keim-Malpass, J., Svynarenko, R., & Lindley, L.C. (2022). A comparison of young adults with and without cancer in concurrent hospice care: Implications for transitioning to adult health care. Journal of Adolescent and Young Adult Oncology. 11(1), 35-40.

Svynarenko, R., Mack, J,W., & Lindley, L.C. (2021). Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatric Blood & Cancer. 68(9), epub.

Keim-Malpass, J., Cozad, M.J., Svynarenko, R., Mack, J.W., & Lindley, L.C. (2021). The medical complexity of children receiving pediatric concurrent hospice care. Journal for Specialists in Pediatric Nursing. 26(4), Epub.

Laird, J.M., Keim-Malpass, J., Mack, J.W., Cozad, M.J. & Lindley, L.C. (2020). Examining variation in state Medicaid implementation of ACA: The case of Concurrent Care for Children. Health Affairs, 39(10), 1770-1775.

Lindley, L. C., Keim-Malpass, J., Svynarenko, R., Cozad, M. J., Mack, J.W., & Hinds, P .S. (2020). Pediatric concurrent hospice care: A scoping review and directions for future research. Journal of Hospice & Palliative Nursing, 22(3), 238-245.

Patterns of Care

Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Newmann, W., & Keim-Malpass, J. (2021). Patterns of health care services during pediatric concurrent hospice care: A national study. American Journal of Hospice & Palliative Medicine, 39(3), 282-288.

Svynarenko, R., Beebe, L., & Lindley, L.C. (2021). Identifying patterns of pediatric mental and behavioral health at end of life: A national study. Journal of Hospice and Palliative Nursing, 23(6), 571-578.

Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Newmann, W.C., & Harris, R. (2023). A national study of health care service patterns at the end of life among children with cardiac disease. Journal of Cardiovascular Nursing. 38(1), 44-51.

Svynarenko, R., Lindley, L.C., Mooney-Doyle, K., Mendola, A., Naumann, W., & Mack, J.W. (2022). Patterns of health care services among children with advanced cancer in concurrent hospice care. Cancer Nursing, 45(6), e843-e848.

Lindley, L.C., Svynarenko, R., Mooney-Doyle, K., Mendola, A., Newmann, W., & Fortney, C.A. (2021). End-of-life health care service needs among children with neurological conditions: A latent class analysis. Journal of Neuroscience Nursing. 53(6):238-243.

Costs

Lindley, L.C., Cozad, M.J., Svynarenko, R., Keim-Malpass, J., Mack, J.W., & Hinds, P.S. (2022). Evaluating the cost-effectiveness of pediatric concurrent versus standard hospice care. Nursing Economic$, 40(6), 297-304.

Cozad, M.J., Svynarenko, R., Hinds, P.S., Mack, J.W., Keim-Malpass, J, & Lindley, L.C. (2022). Pediatric concurrent hospice care: Cost implications of a hybrid payment model. American Journal of Hospice and Palliative Medicine. 39(12), 1436-1442.

Miscellaneous

Rural

Svynarenko, R., Huang, G., Keim-Malpass, J., Cozad, M.J., Qualls, K.A., Stone Sharp, W., Kirkland, D.A., & Lindley, L.C. (2023). A comparison of hospice care utilization between rural and urban children in Appalachia: A GIS analysis. American Journal of Hospice & Palliative Medicine. Epub.

Svynarenko, R., Cozad, M.J., Keim-Malpass, J., & Lindley, L.C. (2022). Incremental cost examination of pediatric hospice care in rural and urban Appalachia. Journal of Rural Health. Epub.

Stone, W.L., Keim-Malpass, J., Cozad, M.J., Clark Fornehed, M.L., & Lindley, L.C. (2022). Pediatric end-of-life care in rural America: A systematic review. American Journal of Hospice and Palliative Medicine, 39(9), 1098-1104.

Fornehed, M.L.C., Svynarenko, R., & Lindley, L.C. (2022). Impact of concurrent hospice care on primary care visits among children in southern, rural Appalachia. Journal of Pediatric Health Care,36(5), 438-442.

Fornehed, M.L., Svynarenko, R., Keim-Malpass, J., Cozad, M.J., Qualls, K., Stone, W., & Lindley, L.C. (2022). Comparison between rural and urban Appalachian children in hospice care. Southern Medical Journal, 115(3), 192-197.

Bioethics

Mooney-Doyle K, Keim-Malpass J, Lindley LC. The ethics of concurrent care for children: A social justice perspective. Nurs Ethics. 2019 Aug;26(5):1518-1527. Epub 2018 Apr 15.

Lindley LC, Edwards S, Bruce DJ. Factors influencing the implementation of health care reform: an examination of the Concurrent Care for Children provision. Am J Hosp Palliat Care. 2014 Aug;31(5):527-33. doi: 10.1177/1049909113494460. Epub 2013 Jul 8

Lindley LC. Health Care Reform and Concurrent Curative Care for Terminally Ill Children: A Policy Analysis. J Hosp Palliat Nurs. 2011 Mar;13(2):81-88.

Methodlogical/Theoretical

Lindley, L.C., & Svynarenko, R. (2023). Privacy-enhancing technologies for chronic disease data: User experience in developing a secured virtual data center workstation (vDWS) environment. CIN Plus: Computers, Informatics, Nursing, 41(10), 739-742. PMCID: PMC10575675.

Svynarenko, R., Cozad, M.J., Mack, J.W., Keim-Malpass, J., Hinds, P.S, & Lindley, L.C, (2023). Application of instrumental variable analysis in pediatric end-of-life: A case study. Western Journal of Nursing Research. 45(6), 571-580.

Svynarenko, R., & Lindley, L.C. (2021). Defining rurality in end-of-life research: Evaluation of common measures. The Journal of Health Care for the Poor and Underserved, 32(4), 2167-2180.)

Lindley, L.C., Fortney, C.A., & Cozad, M.J. (2021). Predictive ability of an illness severity measure: Implications for nursing research. Journal of Nursing Measurement, 29(2),213-226.

Lindley, L.C., Svynarenko, R., & Profant, T.L. (2020). Data infrastructure for sensitive data: Nursing’s role in the development of a secure research enclave. Computers, Informatics, Nursing Plus, 38(9), 427-430.

Lindley, L.C., Svynarenko, R., & Profant, T.L. (2020). Data infrastructure for sensitive data: Nursing’s role in the development of a secure research enclave. Computers, Informatics, Nursing Plus, 38(9), 427-430.

L.C., Cozad, M.J., & Fortney, C.A. (2019). Pediatric complex chronic conditions: Evaluating two versions of the classification system. Western Journal of Nursing Research, 42(6), 454-461.

Cozad, M.J., Lindley, L.C., Eaker, C., Carlosh, K.A., & Profant, T. (2019). Debunking myths about health insurance claims data for public health research and practice. American Journal of Public Health, 109(11), 1584-1585.

CLindley, L.C., & Fortney, C.A. (2019). Pediatric complex chronic conditions: Does the classification system work for infants? American Journal of Hospice and Palliative Medicine, 36(10), 858-863.

Lindley, L.C., & Fortney, C.A. (2019). Pediatric complex chronic conditions: Does the classification system work for infants? American Journal of Hospice and Palliative Medicine, 36(10), 858-863.

Mooney-Doyle, K., Mendola, A., Naumann, W.C., Svynarenko, R., & Lindley, L.C. (2022). Social determinants of comfort: A new way of conceptualizing pediatric end-of-life care. Journal of Hospice and Palliative Nursing, 24(6), 305-311.

Mooney-Doyle, K., Mendola, A., Naumann, W.C., Svynarenko, R., & Lindley, L.C. (2022). Social determinants of comfort: A new way of conceptualizing pediatric end-of-life care. Journal of Hospice and Palliative Nursing, 24(6), 305-311.

Mendola, A., Newmann, W., Mooney-Doyle, K., & Lindley, L.C. (2021). Social determinants of comfort: A new term for end-of-life care. Journal of Palliative Medicine.

• James, K., Hawley, B., McCoy, C.R., & Lindley, L.C. (2021). Challenges and opportunities of providing pediatric funeral services: A national survey of funeral professionals. American Journal of Hospice and Palliative Medicine, epub
• Lindley, L.C., Richar, C.S., Hoit, T, & Steinhorn, D.M. (2021). The cost of pediatric concurrent hospice care: An economic analysis of relevant cost components, review of the literature, and case illustration. Journal of Palliative Medicine, 24(9), 1291-1298.
• Lindley, L. C. (August, 2020). The future of concurrent pediatric palliative care. Louisiana
  and Mississippi Hospice and Palliative Care Organization Newsletter.
• Lindley, L.C. & Morvant, A. (August, 2020). How to hospitalize a child receiving concurrent hospice care. NHPCO Pediatric e-Journal. 60, 61-64.    
• Lindley, L. C., & Carlosh, K. A. (February, 2020). Pediatric concurrent care: Building evidence, informing providers, and serving families. NHPCO Pediatric e-Journal. 58, 37-39.  
• Laird, J. M., & Lindley, L. C. (November, 2019). Implementing pediatric concurrent hospice care: Best Practices – Utah. Policy Brief #19-002, University of Tennessee, Knoxville, College of Nursing. 
• Laird, J. M., & Lindley, L. C. (October, 2019). Pediatric concurrent hospice care: How did states implement? Policy Brief #19-001, University of Tennessee, Knoxville, College of Nursing.